Rare Lois R Posted August 8, 2016 Author #76 Share Posted August 8, 2016 Thanks.... Well, more funky news today:rolleyes:......get this, my insurance company will not allow the actual GLEEVAC....but they will allow a generic...BUT the drug company will not allow the generic:(....so here we go again. I even stopped by the Cancer Center after work today but the gal who normally helps me was out.....I ended up speaking with the Administrator and my Dr was there too....... Tomorrow is another day and she said we would find out more then..... The Dr said if it has not be resolved by end of the week he can give me a 2 week supply of another drug from his office. Maybe tomorrow I will have some better news...... Link to comment Share on other sites More sharing options...
cruise kitty Posted August 9, 2016 #77 Share Posted August 9, 2016 Hi Lois, I'm so sorry that in addition to the stress & worry of your diagnosis you have to go through hoops just to try & get the right medication. I wish I had great advice or wise words for you, but I don't... just wanted you to know I'm thinking about you & rooting for you from the sidelines. :) Debbie Link to comment Share on other sites More sharing options...
Rare Lois R Posted August 9, 2016 Author #78 Share Posted August 9, 2016 Hi Debbie, thanks....I appreciate it.:) Link to comment Share on other sites More sharing options...
NorthernLite Posted August 9, 2016 #79 Share Posted August 9, 2016 I hate to hear anyone going through these ridiculous hoops for a necessary medication. We had the same back and forth between the makers of Embrel and our BC/BS when my husband's analysing spondylitis flared badly a few years back. He was tearing his hair out over the very subsidized injectable the company sent him and then get hit with the "normal" copay two weeks later. Wine helps until the feuding parties finally get their you know what in order. Do not stress over it. Sooner or later they will figure it out. Link to comment Share on other sites More sharing options...
sherilyn70 Posted August 10, 2016 #80 Share Posted August 10, 2016 Today i found out my insurance company will not approve my drug as well. Next step is to send a request for free meds from the manufacturer (which they will most likely approve). On another fun note they also admitted me today. I went on vacation for a week and apparently ran myself down to empty. So getting a tune up (blood, potassium and other fluids) while monitoring my heart to make sure it's not acting up and get a bad cough under control with the help of a little oxygen. Sent from my Samsung Galaxy 7 edge using Tapatalk. Link to comment Share on other sites More sharing options...
Rare Lois R Posted August 10, 2016 Author #81 Share Posted August 10, 2016 Today i found out my insurance company will not approve my drug as well. Next step is to send a request for free meds from the manufacturer (which they will most likely approve). On another fun note they also admitted me today. I went on vacation for a week and apparently ran myself down to empty. So getting a tune up (blood, potassium and other fluids) while monitoring my heart to make sure it's not acting up and get a bad cough under control with the help of a little oxygen. Sent from my Samsung Galaxy 7 edge using Tapatalk. Hi Sherilyn....you know the administrator I spoke with mentioned the drug company does that sometimes....... Thinking of you........ Link to comment Share on other sites More sharing options...
jnc411 Posted August 11, 2016 #82 Share Posted August 11, 2016 Lois and Sherilyn, so sorry you are both going through these tough times. Lois I don't know if it helps, but when my DH had cancer and getting his medications approved, etc. etc, was really a difficult time, but I just kept calling and following up on it, we did get it approved, it did take a letter from the oncologist to the company, but we did get it, they would Fed ex it yo our house then we would take it to the Dr. office, for some reason that made a difference, we did that for 2 years ( we did have to renew after the first year) so just keep on trying to get the meds. But I do understand that it is really frustrating, hang in there. We are thinking of you. Sherilyn, sorry that you are going through these difficult times also, hope that you get all this sorted out soon, and get the meds you need and get on the road to recovery soon. Keep fighting, we are thinking of you. Prayers for both of you Cori Link to comment Share on other sites More sharing options...
Rare Lois R Posted August 11, 2016 Author #83 Share Posted August 11, 2016 Hi Cori, thanks for the good wishes. I feel like all I do is complain but I thought things were going to be better as of yesterday......that is what I get for thinking:rolleyes: The Dr changed the meds to one that is approved by my insurance company AND is on the co pay plan.....the nurse said she got the approval yesterday and so I thought the Specialty Pharmacy was going to have everything.....I never heard from them this morning so I called them......they never received the freakin script:eek::mad::( for the new meds.....I even called the Dr's office but never heard back. I am going to follow up again tomorrow...... The new one is called Tasignia...... Sherilyn, hope you are doing ok........my venting probably sounds petty but it feels better than crying about it all the time. Link to comment Share on other sites More sharing options...
sherilyn70 Posted August 12, 2016 #84 Share Posted August 12, 2016 Sherilyn, hope you are doing ok........my venting probably sounds petty but it feels better than crying about it all the time. Nothing pretty at all worth what you're going through. The whole process is can be so overwhelming and frustrating. You get some of the worst news in your life and then on top of that the financial side also attacks. It's just pure inanity. Just imagine if you didn't have good insurance... i see a lot of purple struggle because they were not prepared for something like this. Single parents of young children with no family around... job that doesn't offer good benefits or fmla... so they are worrying about their children and jobs and income on top of fighting a serious illness. They released me back home late last night but now my leg is swollen from edema. So I'm waiting for that to go down and we pushed radiation out to not start until next Friday now. Sent from my Samsung Galaxy 7 edge using Tapatalk. Link to comment Share on other sites More sharing options...
Rare Lois R Posted August 12, 2016 Author #85 Share Posted August 12, 2016 Hi.....I just keep wondering who the he$$ is responsible for getting the prescription correctly to the right place with the correct information:rolleyes: The Dr had told me if things were not resolved by the end of the week (which is TODAY).....he would give me 2 weeks worth of samples...... well, I will be calling his office again:eek: and maybe I can get an answer. Hope your leg gets better. Link to comment Share on other sites More sharing options...
Rare Lois R Posted August 13, 2016 Author #86 Share Posted August 13, 2016 (edited) Hi girls.....again, thanks for listening:).......I got my meds today. (with more issues even yesterday:rolleyes:) but at least I have them now. They shipped out UPS overnight. I will be speaking with the Dr's office about this and hoping someone at his office can be an advocate for me. But I will definitely be the one calling again to make sure about my next shipment (seems like I spoke with someone every other day) without any positive replies except for yesterday. Oh...the Co pay card and insurance covered it.......I didn't pay anything. The woman at the drug company said this card expires on Sept 1st.....I almost wanted to yell at that point:(....I need to call them again about if it is going to be extended.....this is where I was hoping the Dr's office would be helping me........ (We shall see). Sherilyn, I am thinking of you:) Edited August 13, 2016 by Lois R Link to comment Share on other sites More sharing options...
Jan_In_Maine Posted August 13, 2016 #87 Share Posted August 13, 2016 Lois - I continue to read all these posts and keep you in my thoughts and prayers ..... I'm so sorry about what you are going through with the insurance. I retired and no longer have any insurance, so I do understand the frustrations with doctors, meds, etc. All the best. Jan Link to comment Share on other sites More sharing options...
Rare Lois R Posted August 13, 2016 Author #88 Share Posted August 13, 2016 Hi Jan:).....you have Medicare though, right?......or now you have no insurance at all?:eek: Thanks for the good thoughts.:) Link to comment Share on other sites More sharing options...
Jan_In_Maine Posted August 13, 2016 #89 Share Posted August 13, 2016 Hi Jan:).....you have Medicare though, right?......or now you have no insurance at all?:eek: Thanks for the good thoughts.:) Unfortunately no medicare ... have to wait another year before I qualify. In order to get insurance for both my DH & myself it was going to cost $24,000 per year and then there was a $6,000 deductible per person. It is so frustrating. I have 5 meds I take per day and it used to cost $300 for a 90 day supply ... now that I don't have insurance it now costs me $15.00 for a 90 day supply .... I am so frustrated with the medical profession!!! Good thoughts to you! Jan:) Link to comment Share on other sites More sharing options...
Rare Lois R Posted August 14, 2016 Author #90 Share Posted August 14, 2016 Hi Jan:).....oh my..........:eek:...... I have this med for one month........now that I have it I am going to have to call the drug company and pharmacy again about the next set:rolleyes:.....(not yet) but after what just happened I am not sure the social worker at the Dr's office will step up for me or not. Maybe the 2nd go round will be smoother......one can only hope. Link to comment Share on other sites More sharing options...
VennDiagram Posted August 15, 2016 #91 Share Posted August 15, 2016 LoisR I hope this all gets sorted out quickly. Link to comment Share on other sites More sharing options...
Rare Lois R Posted August 15, 2016 Author #92 Share Posted August 15, 2016 Thank you:) Link to comment Share on other sites More sharing options...
Rare cruisemom42 Posted August 16, 2016 #93 Share Posted August 16, 2016 It seems such a shame that during one of the most stressful times (dealing with cancer or other illness), there is also so much added stress through dealing with insurance, doctors offices, pharmacies, etc. I hope it will be smoother after this. Link to comment Share on other sites More sharing options...
Rare Lois R Posted August 21, 2016 Author #94 Share Posted August 21, 2016 Hi girls..... Sherilyn, how are you doing? I got a bit a nauseous the last few days and the Dr prescribed me something....a little pill that is too long to spell:eek:....it seems to have helped. Cynthia, your last post is so true.....the red tape, BS for getting the meds? I also hope next month's goes smoother. Link to comment Share on other sites More sharing options...
mafig Posted August 22, 2016 #95 Share Posted August 22, 2016 Hi, Lois, Just a quick off topic question. Do you not cruise Celebrity anymore? I don't see you posting over there. Back on topic. I'm following your struggles and wishing you better health in the future. Prayers going your way.:) Link to comment Share on other sites More sharing options...
Rare Lois R Posted August 22, 2016 Author #96 Share Posted August 22, 2016 Hi, Lois,Just a quick off topic question. Do you not cruise Celebrity anymore? I don't see you posting over there. Back on topic. I'm following your struggles and wishing you better health in the future. Prayers going your way.:) Hi:)....this is the first year in many that no, I did not sail with Celebrity. I went on a fabulous River Cruise out of Amsterdam in April and my sister and I are booked on Royal's Serenade of the Seas to New England in October. Not saying I won't sail with X again......maybe. As for not posting over there? I get very tired of that forum (even when I am sailing with them). Thanks for the good wishes. Link to comment Share on other sites More sharing options...
mafig Posted August 22, 2016 #97 Share Posted August 22, 2016 Hi:)....this is the first year in many that no, I did not sail with Celebrity.I went on a fabulous River Cruise out of Amsterdam in April and my sister and I are booked on Royal's Serenade of the Seas to New England in October. Not saying I won't sail with X again......maybe. As for not posting over there? I get very tired of that forum (even when I am sailing with them).LOL! Thanks for the good wishes. You're welcome! Link to comment Share on other sites More sharing options...
sherilyn70 Posted August 24, 2016 #98 Share Posted August 24, 2016 (edited) Hi girls..... Sherilyn, how are you doing? I got a bit a nauseous the last few days and the Dr prescribed me something....a little pill that is too long to spell:eek:....it seems to have helped. Cynthia, your last post is so true.....the red tape, BS for getting the meds? I also hope next month's goes smoother. Sorry i haven't been responding much. This cough is really kicking my but. Yesterday i went and saw my oncologist. When my husband left the room to get something i was surprised as he quickly closed the door and asked me how i was really doing. It's sweet how they are always looking out for me... they really care. I think he just wanted to make sure I wasn't hanging on because i felt obligation to my husband or out of guilt. I keep going back and forth in if i want more treatment or not. I finally committed to moving forward on the new chemo since i need weekly transfusions for potassium at this point. I'm starting radiation on Friday for my knee cap after many delays. Hopefully that doesn't cause me too much fatigue. Sent from my Samsung Galaxy 7 edge using Tapatalk. Edited August 24, 2016 by sherilyn70 Link to comment Share on other sites More sharing options...
iheartbda Posted August 24, 2016 #99 Share Posted August 24, 2016 Sometimes I get so tired of people arguing or being rude on CC. I also wonder about discord in general in the US and beyond. What is wrong with the world?:( Then I come to this thread to see the love, compassion, and goodness that restores my faith in mankind.:) Sherilyn,you are an inspiration to us all. The help you are able to give Lois is priceless although unfortunate how you've come by your knowledge. Lois, I'm wishing only the best for you and the same for Sherilyn. 🌞 Link to comment Share on other sites More sharing options...
Jan_In_Maine Posted August 24, 2016 #100 Share Posted August 24, 2016 Sometimes I get so tired of people arguing or being rude on CC. I also wonder about discord in general in the US and beyond. What is wrong with the world?:( Then I come to this thread to see the love, compassion, and goodness that restores my faith in mankind.:) Sherilyn,you are an inspiration to us all. The help you are able to give Lois is priceless although unfortunate how you've come by your knowledge. Lois, I'm wishing only the best for you and the same for Sherilyn. 🌞 You're post is perfect! Link to comment Share on other sites More sharing options...
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