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A Few Thoughts


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Bob

 

You mentioned in one of your posts that you were not allowed to be with your sweet wife due to HIPPA laws....please know that HIPPA is not meant to keep us away from the support of her loved ones...if need be..she can put in writing that ALL of her treatments and ALL info can be shared with you..

 

good luck to her..and to you both...

 

rosie

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Bob

 

You mentioned in one of your posts that you were not allowed to be with your sweet wife due to HIPPA laws....please know that HIPPA is not meant to keep us away from the support of her loved ones...if need be..she can put in writing that ALL of her treatments and ALL info can be shared with you..

 

good luck to her..and to you both...

 

rosie

 

Rosie;

 

Thanks for the heads up about Hippa.....

 

Bob

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Well we got home from the doctor about an hour ago. We have an appointment on Thursday with the gaastroentronologist (sp). Today Holli's blood work and other stuff was all within normal ranges. The regular doctor is hoping the stuff might be viral. The specialist is to rule out anything more serious. Thanks again for all the well wishes. I told Holli about them and she was bowled over and almost speechless.

 

Will keep you all posted.

 

Bob

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As a Canadian I have never heard the term "Hippa" so Googled it. In Canada we have the Privacy Act and as a result when your children reach the "tender" age of 16 you can, as parents, be denied access to their personal information even if you are acting in their best interests. It is enough to make you pull your hair out, yet there is nothing the medical teams can do. The law is the law.

 

When I first went to visit the Urologist for my cancer the first thing I did was made it very clear that I would not discuss anything unless my wife was present and anything she said was as good as if it came from me. From that point on I had absolutely no problems and she was able to make medical decisions for me while I was under care. Further, getting information from a specialist is, at the best of times, hard to understand, so I wanted another set of ears hearing the same thing as me, so I was sure I had the correct information.

 

As for you, VIRAL...???!!! Wow!! I hope that is all it comes to. That would be great news, I mean as compared to everything it could have been.

 

Again... GOOD LUCK!

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add me to those wishing you and holli the best possible outcome. thank you for posting this, i needed the reminder that most of us are a caring community. lately its been tough going on the boards, but when push comes to shove, i'm glad to see everyone posting to this thread.

 

for holli--thinking of you and hoping you make it to paris and the cruise--if not next month, then whenever you are able. you are fortunate to have the support and caring of your husband, who gave us all here on cc a great gift by letting us into your lives and giving us the opportunity to tell you that you are not alone. both of you have the support of all of us posting here. this stressful time shall become a memory, and i hope you will be left with the warmth of knowing you are part of a caring community.

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From what I understand, the Hippa laws are to ensure your privacy, but not to restrict who you can have with you in the doctor's office. When my MIL was going to have the appointment last fall where she would find out the extent of her tumor, my hubby went with her to get the bad news that it's terminal. I can't imagine that any doctor wouldn't want a patient to be without a family member present in that case.

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I too have been following this thread, and while I haven't posted so far as I didn't want to clutter it up, I feel I need to add my good wishes - I do hope that the latest thought that it may be viral is true, and that you can go on your cruise and not have any more worries.

 

Isn't it wonderful that so many people, all busy with their own plans, can join together in thinking about someone else, whom they don't even know, except through these boards.

 

I wish you and Holli all the best.

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Lots of well wishes coming your way from us...

I know nurserosie touched on the Hippa thing....

but I want to stress to you that if your wife wants you in the room, you can be there if she gives permission.

Don't let someone at the doctors office force you to stay in the waiting room. if that's not what your wife wants

Your wife has a voice in her care.

Based on our family experience we have put it in writing with our provider (Kaiser)

that I can speak and receive info on my mom and dh at anytime and of course they can do this for me. This is not a advanced health care directive that's different...this is just that I have permission to give and receive info and be present.

This includes taking messages, getting lab results, being there for any care or treatment etc etc.

Sometimes the patient is just too overwhelmed physically, emotionally and mentally to absorb everything being said to them and to fully understand, Information does get lost in translation.

That's where your job comes in...you go in there with a yellow note pad...

take notes, have a list of questions and get your answers.

I'm hoping and sending both of you warm thoughts for a speedy recovery and that you can watch the wake of the ship soon!

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Lots of well wishes coming your way from us...

 

I know nurserosie touched on the Hippa thing....

 

but I want to stress to you that if your wife wants you in the room, you can be there if she gives permission.

Don't let someone at the doctors office force you to stay in the waiting room. if that's not what your wife wants

Your wife has a voice in her care.

 

Based on our family experience we have put it in writing with our provider (Kaiser)

that I can speak and receive info on my mom and dh at anytime and of course they can do this for me. This is not a advanced health care directive that's different...this is just that I have permission to give and receive info and be present.

 

This includes taking messages, getting lab results, being there for any care or treatment etc etc.

 

Sometimes the patient is just too overwhelmed physically, emotionally and mentally to absorb everything being said to them and to fully understand, Information does get lost in translation.

 

That's where your job comes in...you go in there with a yellow note pad...

take notes, have a list of questions and get your answers.

 

I'm hoping and sending both of you warm thoughts for a speedy recovery and that you can watch the wake of the ship soon!

 

 

 

 

Thanks for the well wishes and the follow up on the Hippa laws. I will definetely keep that in mind next time we go to the doctors.

 

BTW;

 

I love your travel website, nicely done.....:):):)

 

Bob

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From what I understand' date=' the Hippa laws are to ensure your privacy, but not to restrict who you can have with you in the doctor's office. When my MIL was going to have the appointment last fall where she would find out the extent of her tumor, my hubby went with her to get the bad news that it's terminal. I can't imagine that any doctor wouldn't want a patient to be without a family member present in that case.[/quote']

 

I think the issue was the fact that the area DW was in (for her IV) was an area that had other chairs with other patients in it. My guess is the medical group is concerned about the other patients privacy.

 

Bob

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Well Holli's resting, so I'm going to head out to get a haircut then go do some cruise shopping. Have to pick up a dress shirt that I'll need in Paris. Then it's off to target or wal mart to buy the travel size toiletries we will need. Also need to pick up some extra film for Holli's film camera (yup, she still uses one) and some extra batteries for my point & shoot. After that some items Holli wanted me to pick up.

 

I figure that it serves no purpose for me to sit home and lament about possibly not going on the cruise. Get out and do it is my motto.....:):):)

 

Bob

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My thoughts are with you for your wife's recovery. We went through my husband's illness right before a big 32 day cruise. I think the long days of worry were really helped by my roll call friends and their prayers. My husband was not quite recovered but went on the trip the very last minute. He rested on the ship and by the second half was doing better. He couldn't believe the welcome he got from our cruise critic friends.So much caring.

Just booked another Transatlantic so my husband could enjoy it fully next spring.

Regards,

San diego Sue

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I wanted to chime in as well in regards to my thoughts and prayers being with you and Holli. You are right in going ahead with plans, rather than waiting, worrying and wondering. I'm sure Holli wants you to get things ready, because, with the doctor's care and all our thoughts and prayers heading your way, she will hopefully fully recover in time for the two of you to have your best vacation ever!

 

I'm glad I found CC when I did. Sure, there are the negative posts here and there, but for the most part people are so wonderful, then a post like this explodes with kindness and I feel blessed to be a part of it.

 

Blessings...

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I think the issue was the fact that the area DW was in (for her IV) was an area that had other chairs with other patients in it. My guess is the medical group is concerned about the other patients privacy.

 

Bob

 

 

If she does this treatment again, and really wants you there..you can ask if there is an area they can pull a drape around the 2 of you.

thank you about the website, it's been a labor of love!

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I think the issue was the fact that the area DW was in (for her IV) was an area that had other chairs with other patients in it. My guess is the medical group is concerned about the other patients privacy.

 

Bob

 

If she does this treatment again, and really wants you there..you can ask if there is an area they can pull a drape around the 2 of you.

thank you about the website, it's been a labor of love!

 

I also wish you all the best and that this turns out to be nothing and you can go on your cruise as planned.

I had breast cancer 4 years ago and learned to ask for what I needed. As some have said Holli will need you not only for moral support but as another pair of (calmer) ears. Ask if there isn't somewhere she could get her treatment with you by her side!

BTW We took a cruise right after I found out and it was THE BEST cruise ever. I hope you go. You will REALLY appreciate the cruise.

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